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“People don’t realize we’re twins”: Disease affected the brothers’ appearance differently

Posted on December 8, 2025

Adam Pearson and his brother Neil’s lives changed dramatically in early childhood when they were diagnosed with neurofibromatosis, a rare disease that affects one in every 2,300 people. Despite the challenges, both brothers overcame the disease with fortitude and determination. Adam, in particular, had a successful career in Hollywood despite living with a facial tumor caused by the disease.

Adam Pearson was born on January 6, 1985, along with his identical twin brother, Neil. Diagnosed before they were five, the trigger was a lump on Adam’s forehead that appeared after a fall. Further investigation at Great Ormond Street Hospital revealed a tumor on his neck that was threatening his airway. This discovery led to numerous operations to remove the tumors, often requiring a stay in intensive care.

Adam’s time at Croydon Grammar School was not without its challenges. He endured abuse and bullying, including an embarrassing incident where supposed friends betrayed him, which left him with physical and emotional scars. These early experiences shaped Adam’s resilience and self-confidence – qualities that have shaped his approach to overcoming adversity.

Adam Pearson has become an outspoken critic of societal beauty norms, particularly in the media and cosmetic surgery. He believes that media literacy should be taught in schools to combat the unrealistic beauty standards perpetuated by airbrushing. Adam advocates for more inclusive portrayals of different looks in the media to reduce stigma and promote acceptance.

Despite living with his retired parents, Marilyn and Patrick, Adam is keen to pursue his acting career. He has a sense of humor about his single status and is optimistic about finding love and possibly starting a family, despite the genetic consequences of passing on his condition.

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